ACCOUNT
Unitedaccess Logo
United Access Locations
Referrals to United Access
Shop
Account

You have no Recently Viewed or Saved Vehicles.
Click here to begin your search.


Saved Vehicles

Viewed Vehicles
Show All
Forgot Password
Create an Account
OR
facebook
loginWithAmazon
googleSignIn
Logging in...
< Back
Reset Password
Submitting Request...
< Back
Create an account
Signing up...
Welcome,
Logging Out...
Submit

Scottsdale family whose daughter has cerebral palsy gets new wheelchair accessible van

The Stedman family of Scottsdale is no stranger to adversity. They’ve triumphed over cancer, ADHD, Dyslexia and Cerebral Palsy. Their eight-year-old daughter, Sage, has cerebral palsy and is non-mobile. She was diagnosed at the age of four months.

Not having a safe and accessible vehicle to transport a child in a wheelchair can cause isolation, discouragement, frustration, and depression. That’s one of the many reasons the Stedman family wanted to get an accessible vehicle for Sage.

“Sage has a power chair and it is a joy to see her enjoy this newfound independence, but we’ve been unable to transport it,” said Mrs. Stedman. “Although she can take her chair to school on the bus, her schedule does not allow her to take the bus every day.”

The Stedman family has been searching desperately for the best wheelchair accessible vehicle for their daughter. “But, in addition to the large expense of such a vehicle, we have extra medical bills due to her father’s stage 4 cancer diagnosis,” said Mrs. Stedman, who added that her family has also been working hard to raise funds to help pay for it.

Thankfully, the Steelman Family Foundation, which assists families in need who are trying to purchase their own wheelchair accessible vehicle, has chosen to help Sage Stedman and her family.

 

Mobility Means Everything to the Callaway Family

Black Electric Lift Specialized Vehicle

Taking your child to doctor appointments shouldn’t be a challenge, but for families with children with disabilities, it can be that and much more; it can actually be life-threatening. Thankfully, there are organizations like Chive Charities who assist families when trying to purchase a wheelchair accessible vehicle.

Today is a special day. The Callaway family will be driving home in their new, safe, and reliable wheelchair accessible transportation from United Access (1389 N Cedarbrook Ave, Springfield, MO 65802). The Callaway Family will be leaving in their new 2019 Dodge Grand Caravan with CompanionVan side entry, making everyone’s life a little easier. Thanks to Chive Charities and their generous donors for helping to make this happen.

About the Callaway Family

“We were given a grim diagnosis from the start,” said Mrs. Callaway. “We were told he would never make it to birth and if he did, to cherish the short time we would have with him. The hospital had us fill out a death and funeral care plan before we were to deliver him.”

Raylan is truly a miracle. Raylan was diagnosed with Alobar Holoprosencephaly (HPE) at 20 weeks gestation. HPE is a rare brain malformation affecting 1 in 5,000 to 10,000 live births. Current studies indicate that only three percent of all fetuses diagnosed with HPE survive birth, and only one percent survive longer than 6-months. Raylan is beating the odds as he is now 7 years old!

Raylan was born by C-section due to his head being so large. He had hydrocephalus, also known as water on the brain.  He was 11lbs 11oz and most all that was in his head. The day after he was born, the family asked the doctor if there was anything that could be done to help Raylan be more comfortable. The doctor wasn’t optimistic and told Raylan’s parents that he couldn’t feel anything and to just let nature take its course. Thankfully that is not where his story ended. “We had an amazing nurse who stayed in the room with us after that doctor left,” said Mrs. Callaway.

She asked us what we wanted for Raylan. We told her that he was fighting to live and we were going to fight for him.

This nurse went above and beyond to help this family. She called in an amazing neurosurgeon, even though he was on vacation, he came to meet Raylan straight from the airport. “This new doctor came in the room, picked up our son, and gave us the most optimistic news we had heard since hearing of his diagnosis.” After an examination, this new doctor believed that Raylan could live as long as 18 to 24 months but that would require putting in a VP shunt in Raylan to drain the extra fluid from his head. The surgery went well and the Callaways were able to bring their son home. Not long after being home, they noticed that Raylan was extremely irritable and were struggling to feed him. The shunt was infected and this required another surgery and six weeks in the hospital. The first two years of Raylan’s life were tumultuous and even the neurosurgeon who gave the family their most optimistic life expectancy is amazed on how well he is doing.

Raylan has Cerebral Palsy with spasticitydiabetes insipidus, ventricular shunt for hydrocephalus, and feeding tube all due to having HPE. He is nonverbal but communicates with his facial expressions.  He has no head, neck, or trunk control and relies on his family for total care. Raylan is in a wheelchair. Through the last couple of years, he has had to have hip surgery due to his spasticity pulling his legs out of his hip joints. “Raylan’s spasticity is one of our biggest struggles,” said Mrs. Callaway. “Raylan gets over stimulated easily causing his muscles to get tight. When this happens his whole body gets red and splotchy. He begins shaking all over, screaming, he gets sweaty and his blood pressure spikes.” This condition is called storming.

Despite all this Raylan is a happy guy with a contagious smile. He loves his sisters and he loves being the center of attention.

Raylan has three amazing sisters – Mackenzie is 18, Miya is 14, and Madi is 11. They are great with their little brother and include him in everything they do. Mr. Callaway works as a Sheriff Deputy for Webster County while also owning and operating a small excavating business, Callaway Excavating. Mrs. Callaway stays home to care for Raylan. Going from therapy appointments to doctor appointments and overall daily care, it’s a full-time job.

Receiving an accessible vehicle is such a blessing for our family,” said Mrs. Callaway. “I currently drive a Suburban, but it is almost impossible for me to go anywhere alone with Raylan. Raylan’s wheelchair weighs 72 pounds. It is a struggle to lift it in and out of the back of the Suburban by myself. Raylan is also getting bigger. I have to transfer him to his car seat, which he is also starting to outgrow. It has gotten to where I would rather stay home than get him out.  A handicap accessible vehicle means he could stay in his wheelchair and we wouldn’t have to lift it, and him, in and out of the back of the Suburban.” This grant would make our life so much easier to go places and make the going more enjoyable.

For more information about Chive Charities, visit chivecharities.org. For more information about United Access, visit www.unitedaccess.com.

Helping the Hengstenbergs on the road to independence

The Hengstenbergs have their hands full with three children in car seats and Sawyer, who is in a wheelchair. Sawyer is a very sweet little girl who has been through many things already in her short life. Sawyer was born without a heartbeat, breath or life due to delivery complications. Doctors performed CPR for 30-40 minutes while trying to get a heartbeat. A ventilator was put in place to assist her in breathing and to supply oxygen to her brain. While all this was happening, nurses applied many bags of ice to her head to keep her brain from bleeding. Once Sawyer was stable, she was air lifted to Mercy Hospital St. Louis to the NICU. Sawyer was put on a cold bed for three days to allow her brain time to heal, which she did.

Once we were home, she continued to make progress toward healing. At six months we hit another obstacle; Sawyer was diagnosed with Cerebral Palsy. Cerebral Palsy is a disorder of movement, muscle tone or posture that is caused by damage that occurs to the immature, developing brain, most often before birth. Living with Cerebral Palsy can make it difficult for people to move about as easily, especially when it comes to getting in and out of a vehicle. That same day she was also diagnosed with hip dysplasia. Since her diagnosis, Sawyer has had two hip surgeries. The last of which was a really rough recovery for her. She was recently diagnosed with asthma due to all of the respiratory viruses. This past year she has started to have seizures. She was diagnosed with Seizure Disorder (Epilepsy). We are continuing to work on her feeding, sensory issues and talking and moving.

This van is going to be a life-changer when going places! It is so hard to get her chair in and out of our current van,” said Mrs. Hengstenberg. “We have been in the market for a wheelchair-accessible van to accommodate our family. Having a van that would accommodate us all would be a lifesaver.”

Disabled Girl Sitting In Wheelchair. On Her Legs Orthosis. Child Cerebral Palsy. Inclusion.

Thanks to a few generous organizations such as the Steelman Family FoundationMissouri Assistive Technology, and Varity the Children’s Charity of St. Louis along with several other generous donors, the Hengstenberg family will be driving away in their new 2016 Northstar E Dodge Caravan this Friday at the United Access corporate headquarters.

“The stories we hear every day and the smiles we see on our customers faces when they drive away for the first time, fuel our passion for the work we do,” said United Access Founder, Richard May.

“We are dedicated to giving back to the community that has given so much to us,” said René Steelman, founder of the Foundation. “This is the first grant we’ve been able to provide outside of the West Coast and we couldn’t be happier that it’s going to the Hengstenberg family.”

All in, Sawyer is a healthy, happy, normal little girl. Yes, she has physical disabilities but that doesn’t change who she is. She will brighten anyone’s day and everyone she meets just falls in love with her smile.

Everyone here at United Access wishes all the best to little Sawyer and all of the Hengstenberg family.